Advocate

Aside from raising awareness into Angelman Syndrome, Rare disease as a whole has a very low profile. Many features of AS also apply to other rare conditions (delayed diagnosis, neurological & intellectual impairment, lack of resources), advocating together with other rare conditions creates a louder voice for everyone. International Rare Disease Day is celebrated across the world at the end of February; find out more about what you can do here ....

A National Disability Insurance Scheme is a MUST for all Australians with a disability. Every Australian needs to stand up and say that people with a disability, their families and carers in this country deserve better and that it’s time for change. Australians need to say that people with a disability, their families and carers are Australians too, and that their hopes and dreams count. That they are part of our community, and that they count.

FAST Australia supports the Every Australian Counts campaign. Through the NDIS, current inadequate policies such as the Better Start to Children with a Disability which excludes Angelman Syndrome will no longer exist. Support will be based on need, rather than diagnosis.

Join to support the NDIS and revolutionise disability services. Australians with a disability, their families and carers deserve a fair go.