If you had a dollar for every time you had to explain Angelman Syndrome, no doubt you could fund prestige research labs across the globe. A diagnosis of Angelman Syndrome can often be delayed – stories of diagnosis as adults are still common. We suspect a huge number of cases of AS still remain undiagnosed; currently classified as Cerebral Palsy, Autism or unknown intellectual impairment or seizure disorders.
Raising awareness means:
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Medical professionals think of Angelman Syndrome when trying to reach a diagnosis
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Families have access to concise information to plan for their future
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Networks with like minded families can be formed
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Therapists can tailor plans for learning
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Statistics on diagnosis rates are up to date
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The voice of patients and their families with common needs are heard
How you can help raise awareness
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Buy a FAST Ambassador t-shirt! (two styles pictured right) enquire at info@cureangelman.org.au
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Tell someone your story, if you want assistance in contacting the media we have templates and a media liaison officer you can speak with
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Attend local or regional disability events, hold a stall or talk to a crowd about AS, we can provide the support you need and have a pullup banner and brochures for use
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Share the FAST social media pages (links top right) with friends and family
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Hold an International Angelman Day event
