This is such an exciting time for Angelman Syndrome awareness, interest and involvement. There has been some fantastic reporting on Angelman Syndrome across all mediums which has spurred increased interest in this disorder as well as a call to action to make a difference. (For more news and events from the United States click here)
News
FAST Funds Human Clinical Trial
"This study has the potential to play a much-needed role in improving the core symptoms of Angelman Syndrome and helping patients and families achieve an improved quality of life," said University of South Florida Neuroscientist Edwin Weeber, PhD.
From 2010, The Western Australian branch of the ASA will be donating a percentage of their annual fundraising towards research through FAST, in the quest for an AS therapeutic. FAST Australia welcomes their support and is excited to work together for a brighter future.
Events
A night for the Angels
A Gala fundraising event hosted by AS parents Keith & Michaela Townsend is to be held on March 23, 2012 at the Miramare Gardens in Terrey Hills, NSW. For more details visit the website..
FAST Charity Challenge
Dad to 8yo Mason, Troy Crane is set to fight to defend his title in his third FAST Charity Challenge early 2012, with the date to be decided. Watch this space.
Rare Disease Day
Recognised internationally on February 29 of this year, events are being held at locations around the globe. Nothing being held in your area? there are some great resources on the website to plan an event. www.rarediseaseday.org
