There are many diseases and disorders that will not be cured or treated in our lifetime.
With your help, Angelman Syndrome will not be one of them.

Committed to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life.
Angelman Syndrome is a rare neurogenetic disorder.  Although the cause is known, there are currently no treatments available for this disorder. 


 
 

Raising Awareness~

What does Angelman Syndrome "look" like?
How does it affect those who live with it?
What does a community like FAST mean to families?

Text book clinical characteristics are often hard to translate to "real life". Raising awareness into the condition is instrumental in an achieving accurate and timely diagnosis, connecting families to a community rich with information and hope as well as providing understanding for pathways to therapeutics.

This video is a teaser, or a back story, for a soon to be released series of short clips that will present an accurate illustration of Angelman Syndrome; the characteristics, therapies, the lives of those affected and the hope for a cure.


 

Collaborating for Clinical Trials ~

Agilis Biotherapeutics Sponsors Inaugural Angelman Syndrome Biomarker and Outcome Measures Meeting.  Drawing together Clinical, Research, and Industry Leaders with Families and Advocacy Groups to Advance Patient Centered Development of Therapeutics for Angelman Syndrome. 

Read more here...

                                              

Triathlon for Timmy!

Brisbane dad, Ed Backhouse is taking on the brutal Cairns 70.3 Ironman to raise funds for Angelman Syndrome research on behalf of his son Timmy. Ed is joined by his friends  Jamie, Andrew and Dawid (pictured left).  Dawid says that participating in the event again this year was a "no brainer" enabling him to help Ed on his fundraising journey.

Read more here... 

 

Exciting developments  ~

Last year a number of exciting announcements were made about potential clinical trials of treatments for those affected by Angelman Syndrome.

These developments and more were discussed at the 2015 FAST Gala and Summit in Chicago. Read summaries of the lectures here...

   

NRL Heavyweights support FAST!

They are rivals on the footy field but FAST Ambassadors, South Sydney Rabbitohs player Damien Cook and Canterbury-Bankstown Bulldogs’ Sam Perrett work together to spread the same message raising awareness for FAST and Angelman Syndrome.

Read more here... 


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